Austin Caldwell
Whether it’s coaching baseball, fishing or advocating for his community, Austin stays active with hemophilia A.
Watch Austin’s story
Every hemophilia A patient has a fresh perspective and unique journey. Hear Austin share how Jivi® supports his lifestyle.
Austin Caldwell
As a kid, family and sports provided Austin with a sense of belonging. As he grew older, he found new ways to stay connected and give back. Through coaching and advocacy, Austin’s story reflects his enduring commitment to staying engaged and making a positive impact.
Austin has been compensated by Bayer to share his story and experience with Jivi.
Hear more from patients and caregivers by attending a My Journey to Jivi event.
Meet Austin
How has your experience with hemophilia A shaped your advocacy journey?
“In high school, I took part in a national hemophilia advocacy program, and I became inspired to help others in our community find their voice. Whether it’s volunteering at camp or attending other events, I realized that I could give a lot back to this community, and it feels good to meet other people doing the same thing.”
How did you grow more confident living with hemophilia A?
“When I was younger, playing baseball made me feel more comfortable with my hemophilia because I realized that, with certain precautions, I could be out there. Today, I love being able to give back to the younger generation and teach them techniques to help them improve their games, just like my coaches did for me.”
What have you learned about managing your treatment needs?
“I always make sure to have a dosing schedule that will help me feel protected when I’m doing the things I love. When I learned about Jivi, the study results resonated with me, and I was interested in its extended half-life. I was hoping to adjust my dosing schedule with my doctor based on the frequency of my bleeding episodes, and Jivi gave me the ability to do that. I’ve learned how important it is to be an advocate for yourself and your hemophilia treatment.”
“You have the power to be the loudest voice in the room. Be proud of who you are and speak up for yourself and your needs.”
A Change of Pace
Austin’s love for fishing began as a child when he first ventured out with his Papa. These early experiences not only introduced him to a hobby he would cherish but also provided a special way to bond with his grandfather. Today, fishing remains a big part of his life, offering a refreshing break from his busy schedule. It’s a time for Austin to connect with his family, enjoy the tranquility of the outdoors and create memories. Austin says, “fishing is a nice change of pace and a great break from ordinary life and work. It brings me a lot of peace.”
Finding His Voice
Getting involved with national advocacy opportunities established the importance of self-advocacy in Austin and provided him a platform to give back to his community. Austin noted, “I was lucky enough to meet many mentors and inspirational community members. I learned so much from listening to what those folks had to say, and their messages still stick with me today.” Active participation in advocacy events provided Austin with a deepened sense of belonging within the hemophilia A community and a desire to help others find their voice. These experiences continue to guide his commitment to advocacy and support for others in the community.
Moving Forward with Jivi
Austin’s commitment to staying active has remained as he’s grown into adulthood. After consulting with his doctor, he has been participating in his company's summer softball league and maintains a consistent workout routine. “Exercise is an important part of managing my hemophilia A,” Austin says.
His past experience with a more frequent dosing schedule led him to seek an option with an extended half-life. Austin worked with his doctor to determine that Jivi would be an appropriate option for him. “I was able to reduce my dosing frequency and still maintain elevated and sustained factor levels between infusions,” Austin says.
Jivi is right for Austin, but your needs are unique. Speak with your doctor to find out if Jivi could be right for you.
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INDICATIONS
Jivi is an injectable medicine used to replace clotting factor (Factor VIII or antihemophilic factor) that is missing in people with hemophilia A.
Jivi is used to treat and control bleeding in previously treated adults and adolescents (12 years of age and older) with hemophilia A. Your healthcare provider may also give you Jivi when you have surgery. Jivi can reduce the number of bleeding episodes in adults and adolescents with hemophilia A when used regularly (prophylaxis).
Jivi is not for use in children below 12 years of age or in previously untreated patients.
Jivi is not used to treat von Willebrand disease.
IMPORTANT SAFETY INFORMATION
You should not use Jivi if you are allergic to rodents (like mice and hamsters) or to any ingredients in Jivi.
Tell your healthcare provider about all of your medical conditions that you have or had.
Tell your healthcare provider if you have been told that you have inhibitors to Factor VIII.
Allergic reactions may occur with Jivi. Call your healthcare provider right away and stop treatment if you get tightness of the chest or throat, dizziness, decrease in blood pressure, or nausea.
Allergic reactions to polyethylene glycol (PEG), a component of Jivi, are possible.
Your body can also make antibodies, called “inhibitors,” against Jivi, which may stop Jivi from working properly. Consult your healthcare provider to make sure you are carefully monitored with blood tests for the development of inhibitors to Factor VIII.
If your bleeding is not being controlled with your usual dose of Jivi, consult your doctor immediately. You may have developed Factor VIII inhibitors or antibodies to PEG and your doctor may carry out tests to confirm this.
The common side effects of Jivi are headache, cough, nausea, and fever.
These are not all the possible side effects with Jivi. Tell your healthcare provider about any side effect that bothers you or that does not go away.
For additional important risk and use information, please see the full Prescribing Information.
References: 1. Jivi® Prescribing Information. Whippany, NJ: Bayer LLC; 2018. 2. Data on file. Tx Review 0918. Bayer; 2018.
